| DP or working paper | Katerina Gousia, Olena Nizalova, Gintare Malisauskaite, Julien Forder | 2019 | Heterogeneity in the effect of obesity on future long-term care use in England | | Measurement | |
| DP or working paper | Olena Nizalova, Katerina Gousia, Julien Forder | 2018 | Body mass, physical activity and future long-term care use | | Measurement | |
| Journal Article | Michele Peters, laura Kelly, Caroline Potter, Crispin Jenkinson, Elizabeth Gibbons, Julien Forder, Ray Fitzpatrick | 2018 | Quality of life and burden of morbidity in primary care users with multimorbidity | Patient Related Outcome Measures | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Julien Forder, Florin Vadean, Stacey Rand, Juliette Malley | 2018 | The impact of long term care on quality of life | Health Economics | Application | Identifying the impact of Adult Social Care (IIASC) |
| Discussion paper | Julien Forder | 2018 | The impact and cost of adult social care: marginal effects of change in funding | | Application | Identifying the impact of Adult Social Care (IIASC) |
| Report | Julien Forder, James Caiels, Jenny Harlock, Gerald Wistow, Gintare Malisauskaite, Michele Peters, Joanna Marczak, Francesco D’Amico, Jose-Luis Fernández, Ray Fitzpatrick, Karen Jones | 2018 | A system-level evaluation of the Better Care Fund: Final Report | | Responsive mode | A system-level evaluation of the Better Care Fund |
| Report | Julie Beadle-Brown, Agnes Turnpenny, Beckie Whelton, Lisa Richardson | 2017 | Commissioning services for adults with learning disabilities or autism: the views and experiences of commissioners | | | |
| Journal Article | Stacey Rand, James Caiels, Grace Collins, Julien Forder | 2017 | Developing a proxy-report version of the Adult Social Care Outcome Toolkit (ASCOT) | Health and Quality of Life Outcomes | Engagement | Developing methods for wider inclusion of people with severe intellectual, communication and cognitive impairments |
| Journal Article | Angela Coulter, Graham Kramer, Tim Warren, Chris Salisbury | 2017 | Building the House of Care for people with long-term conditions: the foundation of the House of Care framework | British Journal of General Practice | Service delivery | Personalised care planning for people with long-term conditions |
| Journal Article | Stacey Rand, Julien Forder, Juliette Malley | 2017 | A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers | Quality of Life Research | Application | Identifying the impact of Adult Social Care (IIASC) |
| Journal Article | Stacey Rand, Juliette Malley, Ann-Marie Towers, Ann Netten, Julien Forder | 2017 | Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England | Health and Quality of Life Outcomes | Application | Identifying the impact of Adult Social Care (IIASC) |
| Journal Article | Stacey Rand, Juliette Malley | 2016 | The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice | Health and Social Care in the Community | Application | Identifying the impact of Adult Social Care (IIASC) |
| Journal Article | Michele Peters, Caroline Potter, Laura Kelly, Cheryl Hunter, Elizabeth Gibbons, Crispin Jenkinson, Angela Coulter, Julien Forder, Ann-Marie Towers, Christine A'Court, Ray Fitzpatrick | 2016 | The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development | Patient Related Outcome Measures | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Laura Kelly, Caroline Potter, Cheryl Hunter, Elizabeth Gibbons, Ray Fitzpatrick, Crispin Jenkinson, Michele Peters | 2016 | Refinement of the Long-Term Conditions Questionnaire (LTCQ): Patient and expert stakeholder opinion | Patient Related Outcome Measures | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Angela Coulter | 2016 | Patient feedback for quality improvement in general practice | British Medical Journal | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Journal Article | Agnes Turnpenny, James Caiels, Tanya Crowther, Lisa Richardson, Rebecca Whelton, Julie Beadle-Brown, Stacey Rand | 2016 | Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) | Journal of Applied Research in Intellectual Disabilities | Engagement | Better engagement and response for assessing outcomes in social care |
| Book Section | Angela Coulter | 2016 | Patient and public involvement in healthcare | Healthcare Management | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Book Section | Angela Coulter, Vikki A Entwistle | 2016 | Personalised care planning | Shared Decision-Making in Healthcare Achieving Evidence-Based Patient Choice | Service delivery | Personalised care planning for people with long-term conditions |
| Report | Julien Forder, Juliette Malley, Stacey Rand, Florin Vadean, Karen Jones, Ann Netten | 2016 | IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF) | | Application | Identifying the impact of Adult Social Care (IIASC) |
| Project Outline | Laurie Batchelder | 2016 | Living with Long-Term Conditions: Validation of the Long-Term Conditions Questionnaire (LTCQ) | Project outline | Measurement | Living with long-term conditions (LTCQ) |
| DP or working paper | Julie Beadle-Brown, Sara Ryan, Karen Windle, Jacquetta Holder, Agnes Turnpenny, Nick Smith, Lisa Richardson, Rebecca Whelton | 2016 | Engagement of people with long-term conditions in health and social care research: a review of barriers and facilitators to capturing the views of seldom-heard populations | | Engagement | Literature review |
| DP or working paper | Francesco D'Amico, Juliette Malley, José-Luis Fernández | 2016 | Is the quality of home care for older people in England really improving? Disagreements between the regulators and service users assessments | | Engagement | |
| Journal Article | Agnes Turnpenny, Julie Beadle-Brown | 2015 | Use of quality information in decision making about health and social care services - a systematic review | Health and Social Care in the Community | Application | Use of data on outcomes and quality of services in decision making about services for people with intellectual disabilities and autism |
| Journal Article | Sara Ryan, Sue Ziebland | 2015 | On interviewing people with pets: reflections from qualitative research on experiences with a long term condition | Sociology of Health and Illness | Application | Patients and service users use of outcome and quality information |
| Journal Article | Stacey Rand, Juliette Malley, Julien Forder, Ann Netten | 2015 | Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer) | Quality of Life Research | Application | Identifying the impact of Adult Social Care (IIASC) |
| Journal Article | Karen Van Leeuwen, J Bosmans, A Jansen, Stacey Rand, Ann-Marie Towers, Nick Smith, Kamilla Razik, Birgit Trukeschitz, Maurits van Tulder, H E van der Horst, R W Ostelo | 2015 | Dutch translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) | Health and Quality of Life Outcomes | Measurement | Supporting ASCOT |
| Journal Article | Cheryl Hunter, Ray Fitzpatrick, Crispin Jenkinson, Anne-Sophie Darlington, Angela Coulter, Julien Forder, Michele Peters | 2015 | Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: A qualitative study | BMJ Open | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Angela Coulter, Vikki A Entwistle, Abi Eccles, Sara Ryan, Sasha Shepperd, Rafael Perera | 2015 | Personalised care planning for adults with chronic or long-term health conditions | Cochrane Database of Systematic Reviews | Service delivery | Personalised care planning for people with long-term conditions |
| Journal Article | Tessa Richards, Angela Coulter, Paul Wicks | 2015 | Time to deliver patient centred care | British Medical Journal | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Book Section | Angela Coulter | 2015 | Engaging older patients in their treatment and care | Oxford Textbook of Geriatric Medicine | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Report | Agnes Turnpenny, James Caiels, Tanya Crowther, Lisa Richardson, Rebecca Whelton, Julie Beadle-Brown, Joanna Apps, Stacey Rand | 2015 | Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) | | Engagement | Better engagement and response for assessing outcomes in social care |
| Report | Agnes Turnpenny, James Caiels, Tanya Crowther, Lisa Richardson, Rebecca Whelton, Julie Beadle-Brown, Joanna Apps, Stacey Rand | 2015 | Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) - Appendix | | Engagement | Developing methods for wider inclusion of people with severe intellectual, communication and cognitive impairments |
| Report | Agnes Turnpenny, James Caiels, Tanya Crowther, Lisa Richardson, Rebecca Whelton, Julie Beadle-Brown, Joanna Apps, Stacey Rand | 2015 | Making the Adult Social Care Outcomes Toolkit Easy Read | | Engagement | Developing methods for wider inclusion of people with severe intellectual, communication and cognitive impairments |
| Report | Angela Coulter, Caroline Potter, Michele Peters, Ray Fitzpatrick | 2015 | Cancer PROMs: A Scoping Study. Report to Macmillan Cancer Support | | Application | Use of PROMs in guiding commissioning and clinical decision-making |
| Research Summary | Stacey Rand, Juliette Malley | 2015 | Identifying the Impact of Adult Social Care (plain English summary) | | Application | Identifying the impact of Adult Social Care (IIASC) |
| DP or working paper | Clara Heath, Juliette Malley, Kamilla Razik, Karen Jones, Julien Forder, Diane Fox, James Caiels, Jennifer Beecham | 2015 | How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| DP or working paper | Julien Forder, José-Luis Fernández | 2015 | Using a wellbeing cost-effectiveness approach to improve resource allocation in social care | | Application | Using outcomes information to improve decision-making about care and support |
| DP or working paper | Clara Heath, Juliette Malley, Kamilla Razik, Karen Jones, Julien Forder, Diane Fox, James Caiels, Jennifer Beecham | 2015 | How can MAX help local authorities to use social care data to inform local policy? (Executive summary) | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| DP or working paper | Clara Heath, Juliette Malley, Kamilla Razik, Karen Jones, Julien Forder, Diane Fox, James Caiels, Jennifer Beecham | 2015 | How can MAX help local authorities to use social care data to inform local policy? (Infographic) | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| DP or working paper | Clara Heath, Kamilla Razik, Karen Jones, Jennifer Beecham, Julien Forder, Juliette Malley | 2015 | Further analysis of ASCS and PSS SACE data: Case studies of local authority (LA) practice | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| DP or working paper | Clara Heath, Juliette Malley, Kamilla Razik, Karen Jones, Julien Forder, Diane Fox, James Caiels, Jennifer Beecham | 2015 | How can MAX help local authorities to use social care data to inform local policy? Maximising the value of survey data in adult social care [MAX] project. Executive Summary | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| Conference presentation output | Juliette Malley, Stacey Rand | 2015 | Quality of life of older adults who use social care support and their unpaid carers | | Application | Identifying the impact of Adult Social Care (IIASC) |
| Conference presentation output | Stacey Rand | 2015 | The Adult Social Care Outcomes Toolkit for Carers | | Measurement | Supporting ASCOT |
| Conference presentation output | Michele Peters, Caroline Potter, Laura Kelly, Cheryl Hunter, Elizabeth Gibbons, Julien Forder, Ann-Marie Towers, Crispin Jenkinson, Angela Coulter, Ray Fitzpatrick | 2015 | The long-term conditions questionnaire (LTCQ): a patient-reported outcome measure | | Measurement | Living with long-term conditions (LTCQ) |
| Conference presentation output | Olena Nizalova, Julien Forder, Katerina Gousia | 2015 | Body Mass, Physical Activity and Future Care Needs | | Application | Use of outcome measures in (commissioning) choices about care |
| Conference presentation output | Angela Coulter, Ben Mearns | 2015 | Patient engagement and health information technology. Paper for Commonwealth Fund and Nuffield Trust, 15th International meeting on Improving the Quality and Efficiency of Health Care, 16-17 July 2015 | | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Journal Article | Lisa Callaghan, Ann-Marie Towers | 2014 | Feeling in control: comparing older peoples experiences in different care settings | Ageing and Society | Application | Use of outcome measures in (commissioning) choices about care |
| Journal Article | Lisa Trigg | 2014 | Using online reviews in social care | Social Policy and Administration | Application | Potential and challenges of online service quality feedback mechanisms to support service consumption decisions by social care users |
| Journal Article | Stacey Rand, Juliette Malley | 2014 | Carers' quality of life and experiences of adult social care support in England | Health and Social Care in the Community | Application | Use of outcome measures in (commissioning) choices about care |
| Journal Article | Julien Forder, Juliette Malley, Ann-Marie Towers, Ann Netten | 2014 | Using cost-effectiveness estimates from survey data to guide commissioning: an application to home care | Health Economics | Application | Use of outcome measures in (commissioning) choices about care |
| Journal Article | Michele Peters, Helen Crocker, Crispin Jenkinson, Helen Doll, Ray Fitzpatrick | 2014 | The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey | BMJ Open | Application | Using patient-reported outcomes measures (PROMs) in long-term conditions in primary care |
| Journal Article | Michele Peters, Helen Crocker, Sarah Dummett, Crispin Jenkinson, Helen Doll, Ray Fitzpatrick | 2014 | Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures | Health and Quality of Life Outcomes | Application | Using patient-reported outcomes measures (PROMs) in long-term conditions in primary care |
| Journal Article | Karen Van Leeuwen, Juliette Malley, J Bosmans, A Jansen, R W Ostelo, H E van der Horst, Ann Netten | 2014 | What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey | Health and Place | Measurement | Supporting ASCOT |
| Journal Article | Michele Peters | 2014 | Quality of life and burden in caregivers for individuals with Parkinsons disease | Focus on Parkinsons Disease | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Paul Hewitson, Alex Skew, Chris Graham, Crispin Jenkinson, Angela Coulter | 2014 | People with limiting long-term conditions report poorer experiences and more problems with hospital care | BMC Health Services Research | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Journal Article | Angela Coulter, Louise Locock, Sue Ziebland, Joseph Calabrese | 2014 | Collecting data on patient experience is not enough: they must be used to improve care | British Medical Journal | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Michele Peters, H Boyce | 2014 | Condition-specific measures | Encyclopedia of Quality of Life and Well-Being Research | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Michele Peters, H Boyce | 2014 | Disease-specific questionnaires | Encyclopedia of Quality of Life and Well-Being Research | Measurement | Living with long-term conditions (LTCQ) |
| Report | Nick Smith, Juliette Malley | 2014 | Understanding and addressing underrepresentation in a postal survey of social care users. Summary | | Engagement | Non-response analysis and review |
| DP or working paper | Juliette Malley, José-Luis Fernández | 2014 | Generating Adjusted Indicators from Social Care Survey Data | | Application | Using outcomes information to improve decision-making |
| DP or working paper | Kamilla Razik, Jennifer Beecham | 2014 | Review of factors important in use of survey data for quality and performance improvement: Report from literature review | | Application | Maximising the Value of Survey Data in Adult Social Care (MAX) (previously ASCS and ASCOF development and support) |
| Conference presentation output | Nick Smith | 2014 | Using ASCOT to improve care practice and monitor quality in care homes | | Measurement | Supporting ASCOT |
| Conference presentation output | Ann-Marie Towers, Nick Smith | 2014 | How the Adult Social Care Outcomes Toolkit (ASCOT) can help us understand quality of life and quality of care of people living with dementia in care homes | | Measurement | Supporting ASCOT |
| Journal Article | Michele Peters, Ray Fitzpatrick, Helen Doll, E Diane Playford, Crispin Jenkinson | 2013 | Patients experiences of health and social care in long-term neurological conditions in England: a cross-sectional study | Journal of Health Services Research and Policy | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Angela Coulter, Vikki A Entwistle, Abi Eccles, Sara Ryan, Sasha Shepperd, Rafael Perera | 2013 | Personalised care planning for adults with long-term (chronic) conditions | Cochrane Database of Systematic Reviews | Service delivery | (strand 1) Reviewing and assessing person-centred care for people with long-term conditions |
| Journal Article | Crispin Jenkinson, Ray Fitzpatrick, Helen Crocker, Michele Peters | 2013 | The Stroke Impact Scale: Validation in a UK setting and development of a SIS short form and SIS index | Stroke | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | D Morley, Sarah Dummett, Laura Kelly, Michele Peters | 2013 | The PDQ-Carer: Development and validation of a summary index score | Parkinsonism and Related Disorders | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Michele Peters, Crispin Jenkinson, Helen Doll, E Diane Playford, Ray Fitzpatrick | 2013 | The relationship between experiences of health services and quality of life: a cross-sectional survey with carers of three neurological conditions | Health and Quality of Life Outcomes | Service delivery | Personalised care planning for people with long-term conditions |
| Report | Michele Peters, Helen Crocker, Sarah Dummett, Crispin Jenkinson, Helen Doll, Elizabeth Gibbons, Ramon Luengo-Fernandez, Ray Fitzpatrick | 2013 | Pilot study of patient reported outcome measures (PROMs) in primary care | | Application | Using patient-reported outcomes measures (PROMs) in long-term conditions in primary care |
| Report | José-Luis Fernández, Andrew Hughes, Kevin Watson, Julien Forder, Ray Fitzpatrick | 2013 | Report on using the GPPS to assess trends in EQ-5D scores for people with long-term conditions | | Application | GP patient survey quality of life analysis |
| Report | Julien Forder, José-Luis Fernández, Ray Fitzpatrick | 2013 | Some considerations relating to the attribution of NHS activity to outcomes for people with long-term conditions | | Application | GP patient survey quality of life analysis |
| Report | Joanna Apps, Tanya Crowther, Julien Forder | 2013 | Personal outcome measures and postal surveys of social care | | R15 | Responsive 15% |
| Journal Article | Michele Peters, Suraj Perera, Elizabeth Loder, Crispin Jenkinson, Raquel Gil Gouveia, Rigmor Jensen, Zaza Katsarava, Timothy Steiner | 2012 | Quality in the provision of headache care. 1: Systematic review of the literature and commentary | Journal of Headache and Pain | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Crispin Jenkinson, Sarah Dummett, Laura Kelly, Michele Peters, Laura Dawson, D Morley, Ray Fitzpatrick | 2012 | The development and validation of a quality of life measure for the carers of people with Parkinsons Disease (the PDQ-CARER) | Parkinsonism and Related Disorders | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | D Morley, Sarah Dummett, Michele Peters, Laura Kelly, Paul Hewitson, Jill Dawson, Ray Fitzpatrick, Crispin Jenkinson | 2012 | Factors influencing quality of life in caregivers of people with Parkinsons disease and implications for clinical guidelines | Parkinsons Disease | Measurement | Living with long-term conditions (LTCQ) |
| Journal Article | Michele Peters, Ray Fitzpatrick, Helen Doll, E Diane Playford, Crispin Jenkinson | 2012 | The impact of perceived lack of support provided by health and social services to caregivers of people with motor neuron disease | Amyotrophic Lateral Sclerosis | Service delivery | Personalised care planning for people with long-term conditions |
| Report | Nick Smith, Juliette Malley | 2012 | Understanding and addressing underrepresentation in a postal survey of social care users. Full report | | Engagement | Non-response analysis and review |
| Report | Sara Ryan | 2012 | "Its very weird having other people in the space that you think is kind of private: Choice and decision making around home based health and social care services (Summary) | | Application | Patients and service users use of outcome and quality information |
| Research Summary | Sara Ryan | 2012 | "Its very weird having other people in the space that you think is kind of private: Choice and decision making around home based health and social care services (Final report) | | Application | Use of data on outcomes and quality of services in decision making about services for people with intellectual disabilities and autism |
| Research Summary | Julie Beadle-Brown, Sara Ryan, Karen Windle, Jacquetta Holder, Agnes Turnpenny, Nick Smith, Lisa Richardson, Rebecca Whelton | 2012 | Engagement of People with Long-Term Conditions in Health and Social Care Research: Barriers and Facilitators to Capturing the Views of Seldom Heard Populations. Summary | | Engagement | Literature review |
| DP or working paper | Stacey Rand, Juliette Malley | 2012 | Measuring the Social Care Outcomes of Informal Carers: An Interim Technical Report for the Identifying the Impact of Adult Social Care (IIASC) | | Application | Identifying the impact of Adult Social Care (IIASC) |
| Journal Article | Michele Peters, Ray Fitzpatrick, Helen Doll, E Diane Playford, Crispin Jenkinson | 2011 | Does self-reported well-being of patients with Parkinsons disease influence caregiver strain and quality of life? | Parkinsonism and Related Disorders | Application | Using patient-reported outcomes measures (PROMs) in long-term conditions in primary care |
| Edited Book | Crispin Jenkinson, Michele Peters, Mark Bromberg | 2011 | Quality of Life Measures in Neurodegenerative and Related Conditions | | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Michele Peters, Crispin Jenkinson, Suraj Perera, Elizabeth Loder | 2011 | Quality in headache care. What is it and how can it be measured? | Handbook of Headache | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Crispin Jenkinson, Michele Peters, Mark Bromberg | 2011 | Preface | Quality of Life Measures in Neurodegenerative and Related Conditions | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Michele Peters | 2011 | Outcome measures for informal carers of individuals with neurodegenerative conditions | Quality of Life Measures in Neurodegenerative and Related Conditions | Measurement | Living with long-term conditions (LTCQ) |
| Book Section | Michele Peters | 2011 | Translating patient-reported outcome measures (PROMs) for cross-cultural studies | Quality of Life Measures in Neurodegenerative and Related Conditions | Measurement | Living with long-term conditions (LTCQ) |
